ONCOLOGY/PALLIATIVE CARE/END-OF-LIFE CARE
Ablett J, Jones R. Resilience and well-being in palliative care staff: a qualitative study of hospice nurses’ experience of work. Psychooncology. 2007;16(8):733-40.
Abrahm J. A physician's guide to pain and symptom management in cancer patients. 2nd ed. Baltimore: John Hopkins University Press; 2005.
Abrahm J. Waiting for the platelet count to rise: negotiating care at the end of life. Cancer Invest. 2003;21(5):772-81. Review.
Alvarez G, Kirby A. The perspective of families of the critically ill patient: their needs. Curr Opin Crit Care. 2006 Dec;12(6):614-8. Review.
American Academy of Hospice and Palliative Medicine. Position statement on physician-assisted death. J Pain Palliat Care Pharmacother. 2007;21(4):55-7.
Andershed B. Relatives in end-of-life care – part 1: a systematic review of the literature the last five years, January 1999-February 2004. J Clin Nurs. 2006;15(9):1158-69. Review.
Baker J, Hinds P, Spunt S, et.al. Integration of palliative care practices into the ongoing care of children with cancer: individualized care planning and coordination. Pediatr Clin North Am. 2008 Feb;55(1):223-50, xii. Review.
Bertero C, Vanhanen M, Appelin G. Receiving a diagnosis of inoperable lung cancer: patients’ perspectives of how it affects their life situation and quality of life. Acta Oncol. 2007 Sep 24:1-8. [Epub ahead of print] PMID: 17891669.
Birrell J, Thomas D, Jones C. Promoting privacy and dignity for older patients in hospital. Nurs Stand. 2006;20(18):41-6.
Block S. Perspectives on care at the close of life. Psychological considerations, growth, and transcendence at the end of life: the art of the possible. JAMA. 2001;285:2898-905.
Boston P, Towers A, Barnard D. Embracing vulnerability: risk and empathy in palliative care. J Palliat Care. 2001;17(4):248-53.
Breitbart W, Gibson C, Poppito S, Berg A. Psychotherapeutic interventions at the end of life: a focus on meaning and spirituality. Can J Psychiatry. 2004;49:366-72.
Browning D. To show our humanness – relational and communicative competence in pediatric palliative care. Bioethics Forum. 2002;18(3-4):23-8.
Burt J, Shipman C, Addington-Hall J, White P. Nursing the dying within a generalist caseload: a focus group study of district nurses. Int J Nurs Stud. 2008 Feb 28; [Epub ahead of print]
Cartwright C, Onwuteaka-Philipsen B, Williams G, et al. Physician discussions with terminally ill patients: a cross-national comparison. Palliat Med. 2007;21(4):295-303.
Casarett D, Pickard A, Bailey F, et. al. Do palliative consultations improve patient outcomes? J Am Geriatr Soc. 2008 Apr;56(4):593-9.
Casarett D, Quill T. "I'm not ready for hospice": strategies for timely and effective hospice discussions. Ann Intern Med. 2007 Mar 20;146(6):443-9.
Chochinov H. Dignity and the essence of medicine: the A, B, C, and D of dignity preserving care. BMJ. 2007;335(7612):184-7.
Chochinov H. Dying, dignity, and new horizons in palliative end-of life care. CA Cancer J Clin. 2006;56(2):84-103. Review.
Clayton J, Butow P, Tattersall M. The needs of terminally ill cancer patients versus those of caregivers for information regarding prognosis and end-of-life issues. Cancer. 2005;103(9):1957-64.
Currow D, Ward A, Plummer J, et. al. Comfort in the last 2 weeks of life: relationship to accessing palliative care services. Support Care Cancer. 2008 Mar 12; [Epub ahead of print]
Curtis J. Caring for patients with critical illness and their families: the value of an integrated clinical team. Respir Care. 2008 Apr;53(4):480-7.
Dawson K. Palliative care for critically ill older adults: dimensions of nursing advocacy. Crit Care Nurs Q. 2008 Jan-Mar;31(1):19-23.
Dokken D. In their own voices: families discuss end-of-life decision making – part 1. Interview by Elizabeth Ahmann. Pediatr Nurs 2006;32(2):173-5.
Duke G, Thompson S. Knowledge, attitudes and practices of nursing personnel regarding advance directives. Int J Palliat Nurs. 2007;13(3):109-15.
Dy S, Shugarman L, Lorenz K, et al. A systematic review of satisfaction with care at the end of life. J Am Geriatr Soc. 2008;56(1):124-9. Review.
Ekedahl M, Wengstrom Y. Nurses in cancer care – stress when encountering existential issues. Eur J Oncol Nurs. 2007;11(3):228-37.
Eues S. End-of-life care: improving the quality of life at the end of life. Prof Case Manag. 2007 Nov-Dec;12(6):339-44. Review.
Ferrell B. Understanding the moral distress of nurses witnessing medically futile care. Oncol Nurs Forum. 2006;33(5):922-30. Review.
Gade G, Venohr I, Conner D, et. al. Impact of an inpatient palliative care team: a randomized controlled trial. J Palliat Med. 2008 Mar-Apr;11(2):180-90.
Gavrin J. Ethical considerations at the end of life in the intensive care unit. Crit Care Med. 2007 Feb;35(2 Suppl):S85-94. Review.
Gilligan T, Raffin T. End of life discussions with patients: timing and truth-telling. Chest. 1996;109(1):258-64.
Hack T, Chochinov H, Hassard T, et al. Defining dignity in terminally ill cancer patients: a factor analytic approach. Psychooncology. 2004;13(10):700-8.
Harper J, Hinds P, Baker J, et. al. Creating a palliative and end-of-life program in a cure-oriented pediatric setting: the zig-zag method. J Pediatr Oncol Nurs. 2007 Sep-Oct;24(5):246-54. Review.
Heaven C, Maguire P. Disclosure of concerns by hospice patients and their identification by nurses. Palliat Med. 1997;11:283-90.
Heyland C, Dodek P, Rocker G, et al. What matters most in end-of-life care: perceptions of seriously ill patients and their family members. CMAJ. 2006;174(5):627-33.
Heyland C, Tranmer J, O’Callaghan C, Gafni A. The seriously ill hospitalized patient: preferred role in end-of-life decision making? J Crit Care. 2003;18(1):3-10.
Hirai K, Morita T, Kashiwagi T. Professionally perceived effectiveness of psychosocial interventions for existential suffering of terminally ill cancer patients. Palliat Med. 2003;17(8):688-94.
Houston R. The angry dying patient. Prim Care Companion J Clin Psychiatry. 1999;1(1):5-8.
Hov R, Hedelin B, Athlin E. Good nursing care to ICU patients on the edge of life. Intensive Crit Care Nurs. 2007 Dec;23(6):331-41.
Hughes T, Schumacher M, Jacobs-Lawson J, Arnold S. Confronting death: perceptions of a good death in adults with lung cancer. Am J Hosp Palliat Care. 2008 Feb-Mar;25(1):39-44.
Jenkins C, Lapelle N, Zapka J, et al. End-of-life care and African Americans: voices from the community. J Palliat Med. 2005;8(3):585-92.
Jo S, Brazil K, Lohfeld L, Willison K. Caregiving at the end of life: perspectives from spousal caregivers and care recipients. Palliat Support Care. 2007;5(1):11-7.
Klick J, Ballantine A. Providing care in chronic disease: the ever-changing balance of integrating palliative and restorative medicine. Pediatr Clin North Am. 2007;54(5):799-812. Review.
Kolarik R, Arnold R, Fischer G, Hanusa B. Advance care planning. J Gen Intern Med. 2002;17(8):618-24.
Krakauer E, Penson R, Truog R, King L, Chabner B, Lynch T. Sedation for intractable distress of a dying patient: acute palliative care and the principle of double effect. Oncologist. 2000;5(1):53-62.
Lamont E. A demographic and prognostic approach to defining the end of life. J Palliat Med. 2005;8 Suppl 1:S12-21. Review.
Lamont E, Christakis N. Complexities in prognostication in advanced cancer: “to help them live their lives the way they want to”. JAMA. 2003;290(1):98-104.
Lintz K, Penson R, Cassem N, Harmon D, Chabner B, Lynch T. A staff dialogue on aggressive palliative treatment demanded by a terminally ill patient: psychosocial issues faced by patients, their families, and caregivers. Oncologist. 1999;4(1),70-76.
Maher D, Hemming L. Understanding patient and family: holistic assessment in palliative care. Br J Community Nurs. 2005;10(7):318-22.
Mahmood-Yousuf K, Munday D, King N, Dale J. Interprofessional relationships and communication in primary palliative care: impact of the Gold Standards Framework. Br J Gen Pract. 2008 Apr;58(549):256-63.
Malespina J. Improving the care of the dying: what do the experts say? JAAPA. 2007 Nov;20(11):38,41-3. Review.
Mangan P, Taylor K, Yabroff K, et al. Caregiving near the end of life: unmet needs and potential solutions. Palliat Support Care. 2003;1(3):247-59.
Matsuyama R. Genuine encounters: responses to death. J Clin Onc. 2005;237:1583-4.
McKechnie R, MacLeod R, Keeling S. Facing uncertainty: the lived experience of palliative care. Palliat Support Care. 2007;5(4):367-76.
McKinlay E. Within the Circle of Care: patient experiences of receiving palliative care. J Palliat Care. 2001;17(1):22-9.
Meeker M. Family surrogate decision making at the end of life: seeing them through with care and respect. Qual Health Res. 2004;14(2):204-25.
Meyer E, Ritholz M, Burns J, Truong R. Improving the quality of end-of-life care in the pediatric intensive care unit: parents’ priorities and recommendations. Pediatrics. 2006;117(3):649-57.
Mok E, Chiu P. Nurse-patient relationships in palliative care. J Adv Nurs. 2004;48(5):475-83.
Monterosso L, Kristjanson L. Supportive and palliative care needs of families of children who die from cancer: an Australian study. Palliat Med. 2008 Jan;22(1):59-69.
Morita T. Palliative sedation to relieve psycho-existential suffering of terminally ill cancer patients. J Pain Symptom Manage. 2004;28(5):445-50.
Morita T, Sakaguchi Y, Hirai K, et al. Desire for death and requests to hasten death of Japanese terminally ill cancer patients receiving specialized inpatient palliative care. J Pain Symptom Manage. 2004;27(1):44-52.
Muir J, Arnold R. Palliative care and the hospitalist: an opportunity for cross-fertilization.
Dis Mon. 2002;48(4):207-16.
Muir J, Arnold R. Palliative care and the hospitalist: an opportunity for cross-fertilization. Am J Med. 2001;111(9B):10S-14S. Review.
Mystakidou K, Parpa E, Tsilika E, et al. Depression, hopelessness, and sleep in cancer patients’ desire for death. Int J Psychiatry Med. 2007;37(2):210-11.
National Institute of Health (NIH) Consensus Development Program. NIH State-of-the-Science Conference Statement on improving end-of-life care. NIH Consensus State Sci Statements. 2004;21(3):1-26. Review. Available from: http://consensus.nih.gov/2004/2004EndOfLifeCareSOS024html.htm
Nordgren L, Olsson H. Palliative care in a coronary care unit: a qualitative study of physician’s and nurses’ perceptions. J Clin Nurs. 2004;13(2):185-93.
Norton S, Talerico K. Facilitating end-of-life decision-making: strategies for communicating and assessing. J Gerontol Nurs. 2000;26(9):6-13.
Okon T. “Nobody understands”: on a cardinal phenomenon of palliative care. J Med Philos. 2006;31(1):13-46.
Olthuis G, Dekkers W, Leget C, Vogelaar P. The caring relationship in hospice care: an analysis based on the ethics of the caring conversation. Nurs Ethics. 2006;13(1):29-40.
Olthuis G, Leget C, Dekkers W. Why hospice nurses need high self-esteem. Nurs Ethics. 2007 Jan;14(1):62-71,viii-ix. Review.
O'Shea E, Lintz K, Penson R, Seiden M, Chabner B, Lynch T. A staff dialogue on caring for a cancer patient who commits suicide: psychosocial issues faced by patients, their families, and caregivers. Oncologist. 1999;4(2):122-127.
O'Shea E, Penson R, Stern T, Younger J, Chabner B, Lynch T. A staff dialogue on do not resuscitate orders: psychosocial issues faced by patients, their families, and caregivers. Oncologist. 1999;4(3):256-262.
Pantilat S, Isaac M. End-of-life care for the hospitalized patient. Med Clin North Am. 2008 Mar;92(2):349-70. Review.
Parker Oliver D, Porock D, Demiris G, Courtney K. Patient and family involvement in hospice interdisciplinary teams. J Palliat Care. 2005;21(4):270-6.
Parker M, Cartwright C, Williams G. Impact of specialty on attitudes of Australian medical practitioners to end-of-life decisions. Med J Aust. 2008 Apr;188(8):450-6.
Pavlish C, Ceronsky L. Oncology nurses’ perceptions about palliative care. Oncol Nurs Forum. 2007;34(4):793-800.
Penson R, Partidge R, Shah M, et al. Fear of death. Oncologist. 2005;10(2):160-9.
Penson R, Schapira L, Daniels K, et al. Cancer as metaphor. Oncologist. 2004;9(6):708-16.
Penson R, Talsania S, Chabner B, Lynch T. Help me help you: Support groups in cancer therapy. Oncologist. 2004;9(2):217-25.
Penson R, Green K, Chabner B, Lynch T. When does the responsibility of our care end: bereavement? Oncologist. 2002;7(3):251-8.
Philip J, Gold M, Schwartz M, Komesaroff P. Anger in palliative care: a clinical approach. Intern Med J. 2007;37(1):49-55. Review.
Philip J, Komesaroff P. Ideals and compromises in palliative care. J Palliat Med. 2006;9(6):1339-47.
Prigerson H, Jacobs S. Perspectives on care at the close of life. Caring for bereaved patients: “all the doctors just suddenly go.” JAMA. 2001;286(11):1369-76.
Quill T. Legal regulation of physician-assisted death – the latest report cards. NEJM. 2007;356(19):1911-3.
Quill T, Battin M, editors. Physician-assisted dying: the case for palliative care and patient choice. Baltimore: John Hopkins University Press; 2004.
Quill T, Arnold R, Platt F. “I wish things were different": expressing wishes in response to loss, futility, and unrealistic hopes. Ann Intern Med. 2001;135(7):551-5.
Quill T. Caring for patients at the end of life: Facing an uncertain future together. New York: Oxford University Press; 2001.
Rabow M, Hauser J, Adams J. Supporting family caregivers at the end of life: “they don’t know what they don’t know”. JAMA. 2004;291(4):483-91.
Richardson A. Dying art. Nurs Stand. 2007;22(10):20-1.
Robichaux C, Clark A. Practice of expert critical care nurses in situations of prognostic conflict at the end of life. Am J Cri Care. 2006;15(5):480-9.
Rothman M, Van Ness P, O’Leary J, Fried T. Refusal of medical and surgical interventions by older persons with advanced chronic disease. J Gen Intern Med. 2007;2(7):982-7.
Ruder S. The challenges of family member caregiving: how the home health and hospice clinician can help at the end of life. Home Healthc Nurse. 2008 Feb;26(2):131-6.
Ruopp P, Good M, Lakoma M, et al. Questioning care at the end of life. J Palliat Med. 2005;8(3):510-20.
Rushton C. A framework for integrate pediatric palliative care: being with dying. J Pediatr Nurs. 2005;20(5):311-25. Review.
Russell P, Sander R. Palliative care: promoting the concept of a healthy death. Br J Nurs. 1998;7(5):256-61. Review.
Ryan D, Penson R, Ahmed S, Chabner B, Lynch T. Reality testing in cancer treatment: The phase I trial of endostatin. Oncologist. 1999;4(6):501-8.
Sahm S, Will R, Hommel. What are cancer patients’ preferences about treatment at the end of life, and who should start talking about it? A comparison with healthy people and medical staff. Support Care Cancer. 2005;13:206-14.
Schapira L. Shared uncertainty. J Supp Onc. 2004;2(1):14-15.
Seymour J, Janssens R, Broeckaert B. Relieving suffering at the end of life: practitioners' perspectives on palliative sedation from three European countries. Soc Sci Med. 2007 Apr;64(8):1679-91.
Shahawani H, Wenrich M, Tonelli M, Curtis J. Meeting physicians’ responsibilities in providing end-of-life care. Chest. 2008 Mar;133(3):775-86. Review.
Sibbald R, Downar J, Hawryluck L. Perceptions of “futile care” among caregivers in intensive care units. CMAJ. 2007 Nov;177(10):1201-8.
Sollner W, DeVries A, Steixner E, et al. How successful are oncologists in identifying patient distress, perceived social support, and need for psychosocial counseling? Br J Cancer. 2001;84:179-85.
Stewart M. Reflecting on the psychosocial care of patients with a terminal illness. Prof Nurs. 2003;18(7):402-5.
Stoltz P, Lindholm M, Uden G, Willman A. The meaning of being supportive for family caregivers as narrated by registered nurses working in palliative homecare. Nurs Sci Q. 2006;19(2):163-73.
Strutton D. Essay: A cancer patient’s perspective on how and why care providers should pursue healing partnerships. Health Mark Q. 2002;1993):71-91.
Sulmasy D, A biopsychosocial-spiritual model for the care of patients at the end of life. Gerontologist. 2002;42:24-33.
Teno J, Clarridge B, Casey V, et al. Family perspectives on end-of-life care at the last place of care. JAMA. 2007;291(1):88-93.
Thorne S, Kuo M, Armstrong E, et al. Being known: patients’ perspectives of the dynamics of human connection in cancer care. Psycho-Oncology. 2005;14: 887-898.
Truog R, Campbell M, Curtis J, et. al., American Academy of Critical Care Medicine. Recommendations for end-of-life care in the intensive care unit: a consensus statement by the American Academy of Critical Care Medicine. Crit Care Med. 2008 Mar;36(3):953-63.
Volker D, Limerick M. What constitutes a dignified death? The voice of oncology advanced practice nurses. Clin Nurs Spec. 2007;21(5):241-7.
von Gruenigen V, Daly B. Futility: clinical decisions at the end-of-life in women with ovarian cancer. Gynecol Oncol. 2005;97(2):638-44. Review.
Weckmann M. The role of the family physician in the referral and management of hospice patients. Ann Fam Physician. 2008 Mar;77(6):807-12. Review.
Weidner N. Pediatric palliative care. Curr Oncol Rep. 2007 Nov;9(6):437-9. Review.
Weinrich M, Curtis J, Shannon S, et al. Communicating with dying patients within the spectrum of medical care from terminal diagnosis to death. Arch Intern Med. 2001;161:868-74.
Weissman D. Decision making at a time of crisis near the end of life. JAMA. 2004;292(14):1738-43.
White K, Wilkes L, Cooper K, Barbato M. The impact of unrelieved patient suffering on palliative care nurses. Int J Palliat Nurs. 2004;10(9):438-44.
Wittenberg-Lyles E, Sanchez-Reilly S. Palliative care for elderly patients with advanced cancer: a long-term intervention for end-of-life care. Patient Educ Couns. 2008 Mar; [Epub ahead of print]
Wolpin B, Chabner B, Lynch T, Penson R. Learning to cope: how far is too close? Oncologist. 2005;10(6):449-56.
Zapka J, Carter R, Carter C, et al. Care at the end of life: focus on communication and race. J Aging Health. 2006;18(6):791-813.
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