Palliative Care and End of Life
There are a number of resources available to you or a loved one when facing the end of life. Every patient and family member wants to be assured that the he or she will not suffer. The links below provide useful information to guide you or a loved one through the journey with appropriate help and support. Most important is to start the conversation about end of life preferences early on when clear communication is still possible.
To help ensure that you receive compassionate care, the Schwartz Center has provided the following information, including links to online resources and organizations that can support and assist you. These resources are intended to be helpful, but are not meant to be an exhaustive list of all resources.
American Academy of Hospice and Palliative Medicine
The Academy is the professional organization for healthcare providers specializing in hospice and palliative care who are committed to improving the quality of life of patients facing serious or life-threatening conditions. The organization has compiled articles written by healthcare providers that have been published in the Journal of Palliative Medicine and that provide valuable information for patients and family members.
Guide for a Better Ending
Caring Connections is a program of the National Hospice and Palliative Care Organization that provides free resources on end of life care issues and services, including information on hospice providers and state-by-state advance directives.
Engage with Grace
Engage with Grace is a nonprofit organization focused on improving end of life care through better communication. The organization encourages families to talk about end of life wishes at family gatherings, using five questions that can be downloaded from its website.
Hospice Foundation of America
The Hospice Foundation of America provides information on hospice and coping with grief, loss, and end of life for healthcare professionals and lay caregivers.
Hospice Net provides information and support to patients and families facing life-threatening illnesses. The website provides resources to patients and their families about hospice, end of life, and bereavement. It also includes a well developed section on children and grief.
Get Palliative Care.org
The Center to Advance Palliative Care sponsors this website for patients and families facing life-threatening illnesses. The site is intended to be useful in the decision-making process and includes a comprehensive national directory of hospitals providing palliative care.
The Conversation Project
The brainchild of Pulitzer Prize-winning journalist Ellen Goodman, the goal of The Conversation Project is to have every person’s end of life wishes expressed and respected. It offers tools, guidance and resources to help people of all ages begin talking with their loved ones about their end of life wishes and preferences, including a “Conversation Starter Kit” and links to legal and medical documents to record these wishes and preferences.