Support for Family Caregivers
When you’re taking care of a family member, you need to be able to communicate well with your loved one’s entire medical team. We know that balancing your loved one’s daily needs with your own can be a challenge. Below are some resources that can help.
To help ensure that you receive compassionate care, the Schwartz Center has provided the following information, including links to online resources and organizations that can support and assist you. These resources are intended to be helpful, but are not meant to be an exhaustive list of all resources.
Formerly called the American Association for Retired Persons, AARP has an extensive section on its website devoted to family caregiving, grief and loss, and end of life care.
The CarePages website allows patients and families to create their own web pages to encourage greater communication during times of illness.
Caregiver Action Network
Caregiver Action Network (CAN) is the nation’s leading family caregiver organization working to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age. CAN is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.
Share the Care
Share the Care is an organization that promotes group caregiving so that the burden does not fall on the shoulders of one or two individuals. It was inspired by the experience of the founder who gathered a group of friends to help another friend cope with cancer.
Family Caregiver Alliance
The Family Caregiver Alliance is a nonprofit organization that offers a wealth of information for families and friends caring for adults with chronic, disabling illnesses. Newsletters, fact sheets (many in Spanish and Chinese), online support groups, audio workshops, resource lists, policy updates, caregiver advice, and more are available free of charge on their website.
Next Step in Care
Next Step in Care is a website that provides practical advice and easy-to-use guides for both family caregivers and providers, helping them address patient needs as patients move among hospitals, rehabilitation facilities, nursing homes, and home. The website was created by the United Hospital Fund to promote safer and smoother transitions for patients.