When you’re taking care of a family member, you need to be able to communicate well with your loved one’s entire medical team. We know that balancing your loved one’s daily needs with your own can be a challenge.  Below are some resources that can help.

Resources

To help ensure that you receive compassionate care, the Schwartz Center has provided the following information, including links to online resources and organizations that can support and assist you. These resources are intended to be helpful, but are not meant to be an exhaustive list of all resources.
 
AARP
Formerly called the American Association for Retired Persons, AARP has an extensive section on its website devoted to family caregiving, grief and loss, and end of life care.

CarePages
The CarePages website allows patients and families to create their own web pages to encourage greater communication during times of illness.

National Family Caregivers Association
The National Family Caregivers Association (NFCA) supports, empowers, educates, and speaks on behalf of the more than 50 million Americans who care for a chronically ill, aged, or disabled loved one.  NFCA reaches across the boundaries of different diagnoses, different relationships, and different life stages to address the common needs and concerns of all family caregivers.

Share the Care
Share the Care is an organization that promotes group caregiving so that the burden does not fall on the shoulders of one or two individuals. It was inspired by the experience of the founder who gathered a group of friends to help another friend cope with cancer.

Family Caregiver Alliance
The Family Caregiver Alliance is a nonprofit organization that offers a wealth of information for families and friends caring for adults with chronic, disabling illnesses. Newsletters, fact sheets (many in Spanish and Chinese), online support groups, audio workshops, resource lists, policy updates, caregiver advice, and more are available free of charge on their website.

Next Step in Care
Next Step in Care is a website that provides practical advice and easy-to-use guides for both family caregivers and providers, helping them address patient needs as patients move among hospitals, rehabilitation facilities, nursing homes, and home. The website was created by the United Hospital Fund to promote safer and smoother transitions for patients.

HealthAngle
HealthAngle is a free service designed to collect the experiences of patients and their families who have undergone medical and surgical procedures and share them with others. The site helps patients who are planning to have a procedure or treatment become more educated and reduce their stress.  Visit their website to read about patients’ experiences and share your story.