For additional support we have researched and accumulated useful web links and listed them below:

CarePages.com
CarePages.com allows patients and families to create their own web pages to facilitate communication with loved ones during an illness. A new partnership between CarePages and the Schwartz Center complements the Schwartz Center's mission to advance compassionate health care. The Schwartz Center has created its own CarePage called "Compassionate Connections." This online community provides a forum for patients, families and caregivers to tell their stories about compassionate caregiving. The page also includes an interactive blog called "Bedside Manner," hosted by Executive Director Julie Rosen.

You can visit the Schwartz Center page at: http://www.carepages.com/compassionateconnections.

We hope you will share your story and join the conversation. http//www.carepages.com/

National Family Caregivers Association
The National Family Caregivers Association (NFCA) supports, empowers, educates, and speaks up for the more than 50 million Americans who care for a chronically ill, aged, or disabled loved one. NFCA reaches across the boundaries of different diagnoses, different relationships and different life stages to address the common needs and concerns of all family caregivers.

Share the Care
Share the Care is an organization that provides a model for group caregiving so that the burden does not fall on the shoulders of one or two individuals. It was inspired by the experience of the founder who was called on to gather a group of friends to find a way to help another friend cope with cancer.

Family Caregiver Alliance
Family Caregiver Alliance is a nonprofit organization that offers a wealth of information for families and friends caring for adults with chronic, disabling illnesses. Newsletters, fact sheets (many in Spanish and Chinese), online support groups, audio workshops, resource lists, policy updates, caregiver advice and more are available free of charge on the website.

Next Step in Care
Next Step in Care is a website that provides practical advice and easy-to-use guides for both family caregivers and providers, helping them address the patients needs as they transitions between hospitals, rehabilitation facilities, nursing homes, and home. This informational initiative was created by the United Hospital Fund to promote safer and smoother transitions for patients.

HealthAngle
HealthAngle is a free service designed to collect the experiences of patients and their families who have undergone medical and surgical procedures. The site helps patients who are planning to have a procedure become more educated and also reduce their stress. Please visit HealthAngle to read about patients' experiences and share your story.

Relevant Articles:
Mitnick S, Leffler, C and Hood VL, for the American College of Physicians Ethics and Human Rights Committee. Family caregivers, patients and physicians: ethical guidance to optimize relationships. Journal of General Internal Medicine 2010 10.1007/s11606-009-1206-3.

Relevant Books:
Share the Care: How to Organize a group to Care for Someone Who is Seriously Ill by Warnock, Sheila; Capossela, Cappy, Simon & Shuster, 2004.